Tuesday, September 30, 2008

Day 70 (Long Way Home)

Very early on in this blog I wrote how a couple took home their twins at 109 days. I remember thinking how long that was. Now, 109 days would be a gift. Though I think Riley will be home within the next 39 days, I can hardly say the same about Jack. They have been at the NICU for so long now that the original "shock" of it all has worn off and now Rachael and I are just kind of coasting along in some weird sort of twilight zone. It's hard to explain...

Jack had a better day today than yesterday. I wouldn't consider his day a great one, but it wasn't his worst either. He has no new symptoms, just the same, persisting. Everyone talks about this corner he should turn one day, but when you haven't seen it in 70 days, you start to think it doesn't exist. Of course, we have seen the corner with Riley, after about 60 or so days, and if you look at it as Jack had 3 times the antibodies one hates to do the math and think that Jack won't turn that corner until day 180. That just can't be. Can it?

Riley is doing okay. We are a little skeptical now about any quick exit plan. She seems to have settled into a pattern of taking about 30 cc a feeding. This isn't enough for her to sustain herself without some tube feeding. My guess is they will probably supplement some of her feeding with tube feeding until she is ready to do it all on her own.

Long Way Home (Mom Rock)

1 comment:

kim said...

You guys are doing awesome! Don't forgot how far all of you have come so far...